They Found TB. But That Wasn’t Everything.

On day 20, a TB test came back positive. We treated it aggressively. My son was admitted. Eight days in hospital. He was still getting worse. Nobody could explain why.

“He should have been improving. He wasn’t. Something else was happening inside his brain that we couldn’t see.”

An Ultrasound Changed Everything.

On the twenty-eighth day, an ultrasound showed water on his brain. A brain infection causing hydrocephalus. Nobody had looked for it in a month.

“When the doctor said it, I had no guide, no map, no one who truly understood what came next.”

Seizures. Rehabilitation. And Never Giving Up.

After the diagnosis came seizures. Then months of rehabilitation. His left side badly affected. His hand stayed closed in a fist for months. Today he walks. With support, but he walks.

“Every single step he takes is proof that the fight was worth it. Every one.”

This Blog Is What I Wish Had Existed.

After 2.5 years of reading everything I could find, I built the resource I needed and couldn’t find. For every parent at 2am, searching.